Hospice fears often begin with this “H” word – Hospice. The discussion of help often begins and ends with a single word – “hospice”. It is as if the word itself was a “cause” of the terminal illness instead of the “care” for a someone with a terminal illness. In my many years of working in hospice care, I have been amazed at how many times- even some who works in and believe in hospice- would avoid using the word when someone they were close to clearly needed the care. Over the years we have attempted to find many alternatives to better address this problem. The following two blogs do an excellent job in addressing this challenge. Please check them out and let me know your thoughts.
Fear of the “H” Word…Hospice, Walking on Sacred Ground website, Marygrace Lomboy, MSN, CRNP, ACHPN, CWCN, is a nurse practitioner with Palliative Medicine Consultants and Hospice and Community Care
Marygrace Lomboy, CRNP –
“I had worked in hospice for approx 8 years and when my father was physically declining, it was extremely difficult for me to bring up the “H” word to my own family. My mother whispered it around my dad and the rest of the family. I knew it was time to get hospice involved, but there was so much fear and misconceptions around the “H” word, that it was difficult to get the entire family on board as well as my dad’s physician. When was the right time? I even doubted myself at times in suggesting it…”
Uncomfortable Using the Word Hospice,, Barbara Karnes, RN: Award Winning End of Life Educator and Award Winning Nurse
“The dilemma of not wanting the word ‘hospice’ associated with materials and/or care is unfortunately a common one. I think that is the basis for the creation of the word and idea of ‘palliative care,’ to deal with approaching end of life situations but not actually dealing with the eventual end of life.”
Please let us know your thoughts below: